I have a "rare nerve disease" RSD / CRPS
Reflex Sympathetic Dystrophy / Complex Regional Pain Syndrome.
The color changes in my hands & feet are typical for someone having a flare up. This is stated to be the worse pain on the McGill Pain Index, 42!!
I want to bring what RSD/CRPS to the world so we can hopefully get more known about this severe condition in hopes of learning to prevent this through research. ANY ONE can get this with a simple sprang or for no known reason, a surgery can cause this as can heart conditions.
The medical community for the most part doesn't know about RSD/CRPS & many are told their pain is all in their head, NOT TRUE!
I have found only 2 Docs in the Seattle Area that actually know what RSD/CRPS is & have treated me with success.
I hope my scary photos can help someone that doesn't know what is wrong with them to know what to ask about or seek out RSDSA.org for more info.
Thanks Sam
