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UW autism study needs participants

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by DEBORAH FELDMAN / KING 5 News

Posted on January 7, 2010 at 8:57 AM

Updated Thursday, Jan 7 at 8:57 AM

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SEATTLE -- Researchers at the University of Washington are looking for more than 100 children to help them learn more about autism.A major study is currently under way at four American universities, including UW, that involves taking images of the developing brains of young children.

One of the tiny participants is two year old Tom Hansen. He is the youngest of three sons. His oldest brother, nine year old Sam, has Autism.

"He misses a lot of social cues," explains their mother, Jenny Hansen. Of Sam, she says, "He's either extremely overly touchy and huggy or he won't engage with you and make eye contact. There's just a lot of delay. I would say that my 5 and 1/2 year old just understands the world better than my nine year old does."

That's why she was more than eager to sign up Tom to participate in the UW study.

"I just jumped immediately. I was so excited about it," she says.

Researchers will take brain images of participants as they sleep three times between the ages of six months and two years. It will not harm the children, but it may unlock important secrets about Autism if they can reveal what goes wrong with brain development in infants who later develop Autism.

"There's something that happens probably between six months and a year based indirectly on head circumference measurement. And so what we're doing is the first study to prospectively look at what this process is," explains Dr. Stephen Dager of the UW's Autism Center.

The study is open to babies with at least one older sibling -- some of those brothers or sisters should be diagnosed with Autism, others should not.

"Our goal is to improve lives for children of Autism and their families. We feel very strongly that by identifying children earlier and more accurately that we can start early intervention," said Says researcher Dr. Annette Estes.

Jenny Hansen has seen how early intervention is the key to effective treatment of Autism. Now, she is thrilled that her toddler, who so far shows no signs of Autism, might end up teaching doctors something new.

"Anything that I could do to expand what we already know... I would never hesitate," she says. "I mean, never."

UW Researchers are looking for about 150 infants for the study. About about two-thirds should have at least one older sibling with autism. If you are interested in enrolling your child in the study, call 1-800-994-9701.

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morganthomas said on January 7, 2010 at 9:33 AM

Try the front office at the Seahawks training center.

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tobegolden said on January 8, 2010 at 8:49 PM

This study appears good and exciting except for one thing. The names of the child-subjects should remain secret. This news report acted unethically by revealing Tom's name. Twenty years from today, a Human Resources person may search the internet for Tom as he applies for a job. And here, in this story, he is associated with Autism, whether or not he actually develops the condition. A child's medical conditions should be shielded from the public. Tom has enough time to decide whether or not he wants his participation in this study public knowledge once he becomes an adult. It is grossly unfair that persons with autism and aspergers are stigmatized. But since these children will likely be discriminated against, every means should be taken to protect their identity. NWCN could correct their mistake by editing the story and removing all mention of Tom's real name from the web.

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maltbymike said on January 9, 2010 at 7:38 AM

Patty Murray would make a good canidate.

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homerj said on January 9, 2010 at 1:35 PM

or justcommenting

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homerj said on January 9, 2010 at 1:42 PM

or just add justcommenting....he seems to fit the bill...

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