Rep. Jaime Herrera-Beutler of Washington state and her husband, Daniel, say that their baby is doing very well after being born despite a usually fatal condition.
The parents told their story Friday morning on the TODAY show.
"She is doing amazing," said Herrera-Beutler. "We actually yesterday, in the last couple days, we've gotten to the point where we're holding her. She's playing. She will scream when her diaper's dirty. She is like any other baby. She has a few challenges but, man, she's determined."
Herrera-Beutler’s child, Abigail, is the first baby known to survive the traditionally fatal condition known as Potter’s Syndrome.
The congresswoman, who represents southwest Washington, gave birth on July 15. In June, Herrera-Beutler announced her child was suffering from Potter’s Syndrome. The condition is associated with a lack of amniotic fluid, crucial to lung development. Potter’s Syndrome often results in a terminated pregnancy as babies are unlikely to breathe outside of the womb.
"She was moving in me and (the doctor) is telling me she's not going to live," said Herrera-Beutler. "It was an amazing reality check."
Herrera Beutler underwent specialized treatments at Johns Hopkins Hospital in Baltimore, Md. The baby was delivered prematurely.