Documentary spotlights rare disease affecting boys

Documentary spotlights rare disease affecting boys

A new documentary shares the effects of a rare disease that strikes about one in 17,000 boys. Adrenoleukodystrophy, or ALD, mimics disorders like ADHD, and by the time it's diagnosed, the disease has usually progressed too far for treatments to work. However, ALD can be detected in newborn screening, offering families more hope for successful treatments.

"Ethan's Wish" shares the short but brilliant life of Ethan Zakes, a Bellevue boy who loved skateboarding, and the professional skateboarders who teamed up with Ethan's parents to raise awareness of ALD and raise the call to make the potentially life-saving screening mandatory for all newborn boys.


JOIN THE CONVERSATION

To find out more about Facebook commenting please read the
Conversation Guidelines and FAQs

Leave a Comment
TRENDING VIDEOS